What’s The Matter With Me? Podcast

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My name is John, I’m 40 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis. I made this podcast to share what I’m going through.

Episodes:

The Pre-Op + Amy’s Wedding

The Pre-Op + Amy's Wedding

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What’s The Matter With Me? Podcast Season 3, Episode 14 Excerpt: “Flapping My Arms”

One thing I did notice about the last episode is that I’m flapping my arms again. I first figured out of it about flapping my arms in episode five:

“and this is kind of joking, I guess. I get nervous, you know. You know, if you ever see me like making fart noise or flapping my arms, you know, somebody very close to me has died.”

What it means, basically that. When I’m flapping my arms again, you know I’m scared. I make jokes, it’s because I’m scared.

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I’m going to have micro vascular decompression surgery (MVD)

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Trigeminal neuralgia hurts like hell. I’m going to have micro vascular decompression surgery, get out of pain, get off these pain medications, and contribute to my family again.

I signed up to have surgery. They’re going to pop a hole in my skull and operate on my trigeminal nerve. It’s called micro vascular decompression surgery.

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A Familiar Nausea

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wtmwm s3 e12

  • i awoke up this morning to a familiar nausea. i’d forgotten to take my pills the night before.
  • still can’t get it straight. got me thinkin’….
  • this podcast – like me – is disabled.  not only a podcast about disability or adversity, CHALLENGES or perserverance, this podcast itself is disabled
  • maybe i shouldn’t call it a podcast. but, it’s too late
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Pain / Withdrawal Cycle

S3E11 COVER

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Pain / Withdrawal Cycle

Swallowing Evaluation AKA Diagnostic Fluoroscopy

Had pain and went to the Nurse Practitioner ..

Medication (mis-)management traps me in the the pain & withdrawal cycle. Read more for my visit to the nurse practicioner, diagnostic fluoroscopy, postlude with John John & more.

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