Thanks for visiting the What’s The Matter With Me? Podcast.

Portrait

My name is John, I’m 40 years old, husband, father, small business owner, radio DJ, podcaster and I have multiple sclerosis.

I made this podcast to share what I’m going through.

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Welcome back to the What’s The Matter With Me? Podcast.

Day 42 of Covid-19 Coronavirus quarantine finds me thinking about the value of disabled life.

What is the Principle of Non discrimination?

The principle of non-discrimination seeks “to guarantee that human rights are exercised without discrimination of any kind based on race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status such as disability, age, marital and family status, sexual orientation and gender identity, health status, place of residence, economic and social situation”.

Committee on Economic, Social and Cultural Rights, General Comment No. 20, Non-discrimination in economic, social and cultural rights; 2009.

Do disabled people deserve assistance even though they may require more resources than the ‘average patient?’

(When too many patients are in urgent need at the same time), some are proposing to send the disabled to the back of the line. States across the country are looking to their Crisis Standards of Care plans — documents that explain how medical care changes amid the shortages of an unprecedented catastrophe. While each is different, many have a concerning common attribute: When there isn’t enough lifesaving care to go around, those who need more than others may be in trouble.

Ari Ne’eman, ‘I Will Not Apologize For My Needs,’ New York Times, March 23, 2020.
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Day 23 of self-isolation

I’m going to try practicing some acceptance to get through this terrible experience of confinement, which is worse than usual.

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Day 14 in isolation

coronavirus isolation has my mind stressing, the amygdala, anion mal brain underneath the hippocampus, the thinking part of my brain.

Looking around at the newspaper, it seems like there’s a lot of nutso animals on the prowl right now in our culture and around the world. And it’s a lot of stress. It creates this stress, it’s bad for MS, it’s bad for many things. Almost anything that’s wrong with you, you could do without some stress to deal with it, you know? So, people are not functioning in their highest level right now because of all the stress.

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A crash course in distance learning

I recorded this message on lockdown. I can’t go anywhere due to the coronavirus pandemic and my multiple sclerosis condition. I’m in my house with my family, trying to educate my kids and keep their development on track. We’re taking a crash course in distance learning, e-learning, online education, or whatever it’s called, sooner than any of us thought.

LOCKED DOWN in California. Using my wheelchair to get around the neighborhood. Spoke to the teacher in a Zoom conference. Distance learning, ready or not. In the virtual classroom. Online learning resources from the library. Immersed in the distance learning environment overnight. I may be related to teachers. Spanish lessons.

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