What’s The Matter With Me? Podcast

My name is John, I’m 40 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis. I made this podcast to share what I’m going through.

Episodes:

hardscaping

Trying

What’s The Matter With Me? is a podcast about Multiple Sclerosis and many other things.  In this episode, it’s the month of Mayhem at KFJC, and I go to in for an Occupational Therapist Visit, where I share about Hot Sauce R&D and my Workforce Vision.

Droll

It’s the month of Mayhem at KFJC, and DJs do special programs all month long. Droll pre-empted my show to do a special about music in odd time signatures.

Occupational Therapist Julie

I went to Stanford to visit the occupational therapist.

We talked about my business Hoppin Hot Sauce and R&D, recipe development and production bottlenecks. I told her about my vision of a workforce with disabled, vets, and ex-cons, working together in a supportive environment.

I got on a tangent and had to flush the segment down the toilet. I start over again.

I ask Julie if I should be on disability. She explains how it could help me, and my business..  I tell her the blanket analogy – that MS is a heavy blanket. I tell her about how I believe in trying, and that is why I made this podcast: to try.

Transcript

JOHN HOPPIN: What’s the Matter With Me? Episode one. What is the matter with me? My name is John. I’m disabled. I’m developing my disability consciousness, so I made this podcast. I have multiple sclerosis, and I walk with a cane, and I do all this stuff. And so I made this podcast to say I have multiple sclerosis, check out my podcast. Man, what’s the matter with me? They always say Ronald Reagan was a great speaker because he opened with a joke, and so I … I mean, I wish I had a joke to tell about that. Ronald Reagan, he was President twice.

What’s the matter with me today? I’m going to go see Dr. Julie at Stanford. And after that at 7:30 is the radio station meeting, but I’m not going to be on the radio tomorrow because it is the month of mayhem, and my compatriot Droll is going to be on the air tomorrow from 10:00 am to 2:00 pm. Check it out at KFJC.org.

So anyway, Dr. Julie, she is an occupational therapist. We talk a lot about … I run a hot sauce business, and we talk … I’m trying to manufacture my hot sauce, so I can sell it all up and down the west coast. But right now, I just make it with my mom and very small batches. And I have a couple clients, and people like it; but I need to make a lot more of it in order to really make a go at it. I’m having trouble, because in the recipe, I use Meyer lemons, and those are kind of a special type of lemon. It has a certain taste, though. Makes the hot sauce taste good. So that’s why I use it. And then there’s also a certain type of chile, where I use a special kind. This guy imports it in Texas. I buy it from him. It’s whole. In order to make a big batch, I need a big amount of ground powder.

What’s the matter with me? So, episode one. We are getting to the harder things. I started this podcast to kind of share what I’m going through, which is that I have multiple sclerosis and it’s brought me to be a disabled person. I’ve been singled out for the fact I’m disabled. I’ve had lots of people come up to me and say things to me, and some of them are great, and some of them aren’t so great. And I have all kinds of experiences, same thing: some are great and some aren’t so great. So I started this podcast to just share that.

And so today, I’m going to go see Dr. Julie at Stanford. She’s an occupational therapist, and we’ll talk about what I need to get out of life. What I want to ask her today is, should I be on disability? This is something certain people say I should be on … I’m disabled. I can’t work. Some people say I shouldn’t be on disability, because if I can avoid it … But the thing is, it’s like working my wife to the bone. She has all the pressure. I need to come up with some cash.

I have this business, but like I just shared with you, it’s in the R&D mode. It’s going to take some time. At this point, it’s just barely cracking four figures. It’s going to … It needs to be up there. I want to sell … My goal is to sell one million cases a year, and my staff is going to consist of people who’ve been through the prison system, veterans who are suffering, and other disabled people like me. That’s who’s going to be a big component of my workforce that’s going to be doing this project with me. I want my disabled people with me, because I believe in doing things rather than not. I guess that’s the simplest distillation.

As a disabled person, being disabled is like wearing a blanket. I was telling my wife; it’s like a heavy blanket with no edges. You can’t get out of the blanket. And in multiple sclerosis; I think it’s probably similar in other things, the blanket just gets heavier and heavier. So you could lay there under this heavy blanket, or you could try and make something, and try and get it out of the blanket. You can’t really ever get out of the blanket and really see it out of the blanket, but you can work and do something. That’s what I believe.

So that’s why I made this podcast. That’s what’s the matter with me, and episode one.