Thanks for visiting the What’s The Matter With Me? Podcast.

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My name is John, I’m 40 years old, husband, father, small business owner, radio DJ, podcaster and I have multiple sclerosis.

I made this podcast to share what I’m going through.

Most Recent Episodes:

Day 67 COVID-19 self isolation

I’m working in the garden, while wearing my new AFO brace in this episode of the What’s The Matter With Me? Podcast.

Two months into coronavirus self-isolation, I’m thinking about how this is an important time, one that we’ll remember forever and that our kids will also remember. In this episode of the What’s The Matter With Me? Podcast, I’m thinking about the importance of this time.

Welcome back to the What’s The Matter With Me? Podcast.

Day 42 of Covid-19 Coronavirus quarantine finds me thinking about the value of disabled life.

What is the Principle of Non discrimination?

The principle of non-discrimination seeks “to guarantee that human rights are exercised without discrimination of any kind based on race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status such as disability, age, marital and family status, sexual orientation and gender identity, health status, place of residence, economic and social situation”.

Committee on Economic, Social and Cultural Rights, General Comment No. 20, Non-discrimination in economic, social and cultural rights; 2009.

Do disabled people deserve assistance even though they may require more resources than the ‘average patient?’

(When too many patients are in urgent need at the same time), some are proposing to send the disabled to the back of the line. States across the country are looking to their Crisis Standards of Care plans — documents that explain how medical care changes amid the shortages of an unprecedented catastrophe. While each is different, many have a concerning common attribute: When there isn’t enough lifesaving care to go around, those who need more than others may be in trouble.

Ari Ne’eman, ‘I Will Not Apologize For My Needs,’ New York Times, March 23, 2020.
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Day 23 of self-isolation

I’m going to try practicing some acceptance to get through this terrible experience of confinement, which is worse than usual.

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