What’s The Matter With Me? Podcast

My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis. I made this podcast to share what I’m going through.

Episodes:

Garden

Scene Report: MS Breakthroughs

Over the weekend, I attended the MS Breakthroughs event put on by the National MS Society. The keynote speaker was Jeffrey Dunn, director of the Stanford MS Center. The event promised to inform about the current-day MS Breakthroughs as well as the future of MS Research.

It began with a free breakfast. The guy next to me dug in. I’d already eaten. I heard the danishes were good.

Award Ceremony

Someone who raised $250,00, another raised $100,000 & wrote pieces of legislation.. a team of 4 people raised $1.1m. A cool guy who runs a lot of local support groups received an award.

Alameda

Volunteer of the year came from Alameda. I used to work in Alameda supervising down’s syndrome adults at their jobs collecting carts for the supermarket.
You can’t drive 26 in Alameda without the authorities checking you out! It’s locked down tight in Alameda.

Grouping and Splitting

Dr. Dunn started off with some history of the MS Society, and its important role fostering collaboration, explaining the scientific paradigm of grouping and splitting.

Things start far apart and come together, collaborate, and become normalized, then specialization occurs. Repeat process forever.

Biology is complicated

Biology is complicated – the result of complex processes comprised of many interacting components. Why things happen is often unclear.

We need a map

In MS, the immune system attacks the brain. There are at least a few thousand pathways in the immune system – there’s no map. Dunn thinks we need one, because identifying the specific immune pathways driving disease can enable individually tailored treatment

Immune Hypertension

Dr. Dunn suggested that Multiple Sclerosis is an endstage name, like referring to a “stove fire” as a “burned down house”. He said a better name might be immune hypertension.

Thanks for listening

To the Whats The Matter With Me? Podcast
Other episodes at whatsthematterwithme.org, iTunes, or wherever you get your podcasts..
Check out more of my music on soundcloud.com
Hoppin Hot Sauce is a movement!
(Hoppin hot sauce theme)
Season 3 episode 2 in the books! Thanks for listening to the What’s The Matter With Me? Podcast.

Flyer on table

Something Happened at Bill’s Cafe

I order coffee and toast, John John gets pancakes.
Tap on my shoulder, our host –
“Excuse me sir, is that.. your underwear?”

Injury in the yard

I was working in the yard, fertilizing some yellow cauliflower plants.
I stepped in a hole leftover from when we pulled out tomato plants and I fell to my side. It felt like i tweaked it.
I was in a wheelchair or bed ridden. I had a lot of work to finish before Christmas.

I was on the radio

Last Friday, I hosted the Jazz Collective on 89.7 kfjc.org
This morning at 4am i got this message:

Y o your jazz collective was the stuff man. I played all of it while cooking dinner and hanging with friends. Nice balance of easy listening and skronk. Omg it was so fat

Anonymous

There’s no difference

Its cool to be on the radio where i can have a voice and it doesn’t make a difference that i’m disabled..i like playing records too.
Check it out: Jazz Collective last Friday at kfjc.org
My air name is Hemroid The Leader. i’ll explain later.
The stream is up for 2 weeks.

MS Breakthroughs

I’ll be attending MS Breakthroughs with Jeffrey Dunn on Saturday January 26 in San Jose.
I’ll bring some flyers in case somebody wants to hear a podcast.

MS Breakthroughs

Join us to learn about our progress this past year in accelerating breakthroughs for people affected by MS, what’s in store for the year ahead and enjoy a research update from our keynote speaker Jeffrey Dunn, MD, Professor of Clinical Neurology and Division Chief of Clinical Neuroimmunology at Stanford Neuroscience Health Center at Stanford University in Palo Alto, California.

He serves as the Chair of the MS Section of the American Academy of Neurology and serves on the National Medical Advisory Board of the National MS Society.

Re

Thanks for listening

To the Whats The Matter With Me? Podcast
Other episodes at whatsthematterwithme.org, iTunes, or wherever you get your podcasts..
Check out more of my music on soundcloud.com
Hoppin Hot Sauce is a movement! makes every plate taste great hoppinhotsauce.com
(Hoppin hot sauce theme)
Season 3 episode 1 in the books

Beach

LIVE From The Petaluma SMART Station

My brace helps me to walk, but it doesn’t mean I can go out walking. I learned it the hard way yesterday when I went out in Petaluma.

Live broadcast from a bench outside the Petaluma SMART Station.

Sorry I’ve been away

I’ve been doing events for Hoppin Hot Sauce.

BJ Miller

I met BJ Miller at a latke party. I have been wanting to meet him in person to this article in the New York Times from January 2017. I got to sit down right next to him and talk, it was awesome. Tell you more later

Thanks for listening

I’m looking forward to more episodes in 2019.