Bad news first: the kids are bad, they run away.
Hoppin Hot Sauce won some awards.
This week’s episode takes place in a cable car.
Welcome to Whats The Matter With Me? Season 2, Episode 14: Harvest & Wedding
- My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through.
- Whats The Matter With Me? is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ask your healthcare provider.
I got a new brace from a disabled provider; I am a creative person and for me that means I must take charge of my own representation in order to be who I imagine; Hoppin Hot Sauce is advancing, and I’m getting more disabled and simple things are getting harder.
Shoutouts to Rocky- always listening; Kyle fromTwo Disabled Dudes podcast, to my wife who worked hard at the Harvest Festival and every other day too. Email me and I will give you a shout out free of charge.
Off The Air
I’ve been off the air for a few weeks, I took Hoppin Hot Sauce to a Harvest Fair. I’ve started a
Hoppin Hot Sauce Youtube channel, and I went on vacation to a wedding in Malibu. let’s get into it.
We went to the Harvest Festival at Marshall Cottle Park in San Jose, organized by San Jose Made, a local organizer of maker events and craft fairs. We set up a booth for Hoppin Hot Sauce, with bottles, poster easels, and myself and my wife passing out samples.. My goals were #1- to represent the brand and #2- to sell some sauce. We did well. It was 5 hours of talking, very tiring and I slept the whole next day. Next time I will be sure there are two people with me, not just me. I am no good to fold a popup canopy no matter how easy it is. i made a video about it and put it on the youtube channel.
I started the Hoppin Hot Sauce youtube channel. I made two videos: the zipa, and the harvest fair recap. i’ve been directing a lot of my energy that way, learning software i haven’t used in 15 years, learning about putting it online. I like it because I can tell my brand’s story, speaking directly to the customer, and also say things that are positive representations of disabled people.
I went to malibu for a beautiful wedding under a big palm tree at a glamorous house overlooking the ocean. they were my wife’s oldest friends, they had grown up scampering over the fence to each other’s house in 1980s southern california.
Creating New Products
I’m working on some new products for Hoppin Hot Sauce , one is a spicy salad dressing which seems crazy but people often remark to me that they put it on salad.
when it was time to make lunch today i cubed up some leftover tritip, tossed it with arugula in a bowl, and put spicy salad dressing on it, some walnuts and raisins, and it was pretty good. I’m in mad scientist mode: I’ve got some ideas, and I’ll keep going. I’m also doubting myself constantly like always. The struggle is to move forward and to be comfortable with the unknown. i must always remember- move onwards.
Welcome to the What’s the Matter With Me? Podcast, season two episode 14.
My name is John, I’m 39 years old, a husband and father of two. Small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through. What’s the Matter With Me is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ask your healthcare provider.
Recap, recap. Last episode I got a new brace from a disabled provider, what that means is like the doctor lady in the co was disabled, I thought it was cool. I’m a creative person, I figured this out. Well I knew I was creative but I realized for me that means I must take charge of my own representation in order to be who I imagine. Hoppin’ hot sauce is advancing and I’m getting more disabled at the same time. Simple things are getting harder. It’s that time now, it’s that time. Gotta give shout outs.
Shout outs to Rocky, always listening. Shout outs to Kyle from Two Disabled Dudes podcast and to my wife who worked so hard at the harvest fair and every other single day too. Email me, email@example.com and I will give you a shout out. Probably free of charge. Definitely free of charge, you can download the What’s the Matter With Me podcast on Apple podcast and on whatsthematterwithme.org.
I’ve been off the air for a few weeks. I’ve been busy though but definitely prostrate myself. I’m sorry to you. But here it is, here’s a new episode. In the meantime I’m gonna tell you what went down, I took hoppin’ hot sauce to a harvest festival and I started a hoppin’ hot sauce YouTube channel, and I went on vacation to a glamorous wedding in Malibu, so let’s get into it.
We went to the harvest fair in San Jose here, organized by San Jose maid, a local organizer of maker events and craft fairs. So they have a harvest festival every year at harvest time, around this time and they set up an arcade of vendors who sell candles and gluten-free baked goods and stuff. We went last year, and I was like I wanna be in there, I want hoppin’ hot sauce to be there. So this year I applied and we set up a booth for our hoppin’ hot sauce bottles and posters on easels, and myself and my wife passing out samples and selling bottles.
My goals were number one, to represent the brand and number two, sell some sauce. And we did that. We did well, I was happy at the end of the day. But it was five hours of talking, it was so tiring. I slept the whole next day and next time I bring the hoppin’ hot sauce tasting experience out in the open like that, I have to be sure there are two people with me, not just me. Because I’m no good to fold even a pop up canopy no matter how easy it is. I made a video about the harvest fair and I put it on my YouTube channel.
What’s that, what’s that about a YouTube channel? I started the hoppin’ hot sauce channel. I’ve made a couple videos so far, one is about the zebra who’s like the ancient king of Lake Guadaveda who started the myth of El Dorado or the myth of El Dorado centers around the zebra. And I made another one about the harvest festival recap, about the square dancers and the goats and other stuff. Check it out. It’s the hoppin’ hot sauce YouTube channel.
I’ve been directing a lot of my energy that way. Learning software, relearning software about video editing that I haven’t used in 15 years and I’m learning about putting it online. And I like having the video medium because I can tell my brand story speaking directly to the customer and also I can say things that create positive representations of disabled people. Check this out. Thanks for watching the pepper show, I’m John Hop and I make hoppin’ hot sauce, check it out at hoppinhotsauce.com. I have multiple sclerosis, it made it hard to work in the kitchen but it didn’t stop me from cooking. I made hoppin’ hot sauce to share the taste of my table with yours. Check it out, get some at hoppinhotsauce.com.
All right, see what I’m saying? I think that there’s something powerful about that, it’s telling my story, it’s who it is. Take it or leave it. I did this, I won’t stop. If you’ve been listening to my podcast you know nothing, I’ve decided over and over that I won’t stop. I’m sorry I took a break.
I went to Malibu with my wife to a big beautiful glamorous wedding under a palm tree at a big white house overlooking the ocean. The bride was my wife’s oldest friend and she’d grown up scampering over the fence. They both scampered back and forth to each other’s houses in 1980s Southern California. It was cool to hang out with this lady and her family and meet her husband and it was cool to get a glimpse of all these people that my wife had told me so much about. And it was cool to be in Malibu. I even hit up the weirdest spot, I had the weirdest day in Thousand Oaks.
I went to a place called the Record Outlet, which is a used record store in Thousand Oaks. It was awesome. And then for lunch I was like I don’t know anything, let’s go to a pub. You know how it is, you don’t wanna like look stuff up, I didn’t wanna see about the rating or whatever. So I just went, we went to this pub and it was like Hooters and it was a big room full of guys watching horse racing and another room full of college football and there was like betting going on and the ladies, it was called, what was the theme? Scottish Hooters. So everything was out there, it was just … we each had a beer and we split the spot. It was weird but the record store was really cool. Record Outlet in Thousand Oaks, I wanna go back.
That was not a paid advertisement, I just like used records stores. I’ll go to a used record store any day. I’m working on some new product, I’m working on some new products for hoppin’ hot sauce. One is a spicy salad dressing which seems crazy but people often tell me that they put the sauce on salad. So when it was time to make lunch today I cubed up some leftover tri-tip steak, I tossed it with arugula in a bowl and put spicy salad dressing on it. Some walnuts and raisins and it was pretty good, I’m in mad scientist mode now. I got some ideas and I’ll keep going.
I’m also doubting myself constantly like always. Maybe I should just give up. But the struggle is to move forward and be comfortable with the unknown, and I have to always remember onwards. Thank you for listening to the What’s the Matter With Me podcast, that’s another one in the books. You can download What’s the Matter With Me podcast on Apple podcast and on whatsthematterwithme.org. Thank you for listening.
WTMWM? – S2, E8: The Disability Trap
Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 8: The Disability Trap
My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster and I have multiple sclerosis (MS), so I made this podcast to share what I’m going through.
The Whats The Matter With Me? Podcast is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ask your healthcare provider.
Episode 7 Recap
Last episode, I took MS medicine by infusion and it knocked me out and burned me up, complained about reddit, new brace, I can zip up my own fly, for now.
Shout out to Patrick– it turns out he found out about this podcast from the time I posted it on Reddit so in fact even though I thought it was disappointing, I got through to people even though I didn’t see it at first. Patrick is a young father with MS like me. He told me that he was inspired by What’s the Matter With Me? and started his own Ms blog on Facebook called Taking It Day By Day- Patrick’s MS Story. Check it out and many thanks and shout outs to Patrick.
I’m just going to keep it rollin’ with the shout outs so shoutouts to Rocky. I know she listens because she responds to the episodes in text messages. She is a librarian and she is trying to get the American Library Association to divest from fossil fuels. She has started to reach out to divestment experts to help amplify her argument from an environmental as well as a financial viewpoint. It’s very persuasive and I will put a link to it in the post on this episode on whatsthematterwithme.org. Shoutouts and thanks for listening Rocky. Click here to listen to her interview.
The Disability Trap
I watched an interesting short film called The Disability Trap by Jason DaSilva, the director of When I Walk, probably the foremost disabled filmmaker. He wrote an op ed in New York Times and as part of it included The Disability Trap, which raised some important questions. Before I get to that I noticed that the movie is about 13 minutes long, I think MS people make stuff that is about 13 minutes long and that’s about right I guess. That’s how I do it too. The film tells how in some states like New York, where Jason lives, the state provides one-on-one in-home care, so he live at home, be more independent and studies show he will have a longer life expectancy. His son lives in Texas, and in order for Jason to move there he will have to live in a home and he will lose a considerable amount of Independence and freedom. The point of his op-ed is that this creates an impossible choice whereby in order to gain proximity to his son he must relinquish his life as he knows it. It’s from the New York Times June 24th edition, called The Disability Trap by Jason DaSilva.
John’s Birthday / Swimming
It is so important tor me to be present as a father to my son, and I can’t imagine what Jason is going through. It’s John John’s 5th birthday tomorrow and we are going to go to Santa Rosa to be with my parents. We will all go swimming in the pool. I might try and get into the pool it’s kind of hard and I stubbed my toes a lot but I think I will try. I hope it is not too dangerous. Maybe I will try getting in on the deep end. I hope I can still swim.
Hoppin Hot Sauce Movie
I made the Hoppin Hot Sauce movie where I spoke about how I have MS but I didn’t let it stop me from cooking. I put it on my Youtube channel, and my customer email, where this month it was the top item. I was nervous about it, but the response has been uniformly positive. The gears are spinning and I am working on a few more videos already. Hoppin Hot Sauce is good sauce and social entrepreneurship and I think there’s something very positive about that. I’m going to keep working at it.
I’m starting to get tomatoes off the tomato plants and their are pretty ugly but they are delicious. I hope we get a lot more. We put them in salad with oil and vinegar, basil and salt.
Welcome to the What’s The Matter With Me? Podcast, Season 2, Episode 2 “Cafeteria”
My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through.
What’s The Matter With Me? is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your healthcare provider
Download the What’s The Matter With Me? Podcast on Apple Podcasts and whatsthematterwithme.org
Shoutouts to Rocky and Pat and some other people who contacted me to say they were digging this season premiere and looking forward to more. You can contact me using the contact page.
Great new life activity
A very validating new life activity that I have is answering Hoppin Hot Sauce fan mail. I am so glad to get Hoppin Hot Sauce out in the world.
Take a seat in the cafeteria
I went to John John’s school orientation. It was in the cafeteria. I had to figure out where to sit. One of the teachers couldn’t work a microphone. They passed out a handout that listed the topics they would discuss but no useful information about them. The principal talked about rules for a long time like the uniform and punctuality. I’m very excited, I’m just traumatized having gone to school already I didn’t consider going back.
Neverending jaw pain story
I increased my dosage of Gabapentin because I was having jaw pain. It made the pain go away but it made me sleep all day. I have reduced my dosage and I feel some pain but very low on the scale like one or two out of 10. I’m not too sleepy or sedated. I’m taking 300 extra milligrams right now. A couple of days ago I was taking 900 extra milligrams. Something like that. I think I should get some guidance from the nurse.
One of the coolest things about this podcast is that when they listen to old episodes like from a year ago I can gauge how I feel now versus how I felt then and it is useful. I am doing a lot better than I was a year ago.
Recording the voiceless
I’m doing a special on KFJC about the musicologist Ian Brennan called Recording The Voiceless. He travels around the world recording prisoners, albinos, victims of genocide poverty and war. He’s recorded in Vietnam and Cambodia. Rwandan refugees. Albinos who are stigmatized and even killed for the a white color of their skin which is considered to have special properties. The albinos have a tune called “Disability is not a crime”. That’s how I got into it. The way he records voiceless people is kind of similar to the way disabled people aren’t given a voice, and I am concerned with that. I’ll play my interview with Ian on Thursday May 24th from noon to 2 p.m. Pacific Time on kfjc 89.7 FM and kfjc.Org where there will be an archive of it for 2 weeks.
Hoppin Hot Sauce is real
Hoppin Hot Sauce is real and is produced and it’s for sale at hoppinhotsauce.com. I’ll discuss it in more detail in an upcoming episode. If you end up as a customer, maybe you will end up writing me some fan mail.
What’s The Matter With Me? Podcast
Episode 24: Hole
Recovering from Multiple Sclerosis and moving my small hot sauce business forward
“Hole in the wall”, A fall story
I tripped over myself in my bedroom and punched a hole in the wall. It was klutzy and embarrassing, but at least the wall took the worst of it and I came through okay.
I’m in recovery
My Nurse Practitioner told me I was in recovery from MS and that changed my perspective. I have been in a defensive stance, and I can begin to makje positive steps forward.
Hoppin Hot Sauce — Extra Hot
I’m spending all of my time creating a new flavor of Hoppin Hot Sauce, Extra Hot.
Keep things positive and moving forward in a good direction, and everything will be all right.