I went to the radio station, to the independent living center and joined the gym. I’m beginning to advance.
My name is John,
I’m 40 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.
I created the What’s The Matter With Me? Podcast to share what I’m going through.
I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.
I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.
If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.
Everything is receding like the ocean after the wave has crashed and it’s pulling your feet. The gym, hot sauce, supply chain- things are in recession.
I moved past my fear of driving by breaking it down into small steps and listening to my inner Phil Jackson.
I miss having barbecues and I’ve got to get over it. Cat meowing in the middle of the night. Children are like lice.CLICK FOR TRANSCRIPT
Hearing the sound of missing teeth. Night driving. Hanging out at Cato’s Ale House felt like a win.Read more
We’re going on a family vacation and it’s something to be proud of.
It’s an accessible vacation- all the attractions have paved paths. We’re staying at a place with a pool and AC. I’m cauitiously optimistic.
PLUS, Cult episode!
What if this was a religious or cult podcast? Check out this episode to see how it would be.
In this episode,
- Where’s your head at?
- I need to record my activity as an Amazon seller in Quickbooks. It’s creating stress.
- I ran into a lady at the gym and forgot her name. Her name rhymed with her husband’s and was ambiguously gendered.
Listen to the episode to hear how it all went down.Click for transcript
Talking about putting myself out there. I realized I always put myself out there. I mean, you’re listening to it… Goes along with one of my biggest fears… losing the ability to express myself.
I was on the radio yesterday morning and it got me thinkin’. I’ve always put myself out there- ever since I was a teenager and probably before that. Just to have something to belong to. We go over a timeline of examples.
I’m getting more disabled and things are getting harder for me. My biggest fear is becoming voiceless and invisible.read transcript