I’m 40 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.
I created the What’s The Matter With Me? Podcast to share what I’m going through.
I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.
I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.
If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.
Talking about putting myself out there. I realized I always put myself out there. I mean, you’re listening to it… Goes along with one of my biggest fears… losing the ability to express myself.
I was on the radio yesterday morning and it got me thinkin’. I’ve always put myself out there- ever since I was a teenager and probably before that. Just to have something to belong to. We go over a timeline of examples.
I’m getting more disabled and things are getting harder for me. My biggest fear is becoming voiceless and invisible.
https://whatsthematterwithme.org/wp-content/uploads/2021/07/putting-myself-out-there.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-07-14 22:23:042021-07-16 00:08:21Putting Myself Out There
https://whatsthematterwithme.org/wp-content/uploads/2021/06/on-the-zon.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-06-25 23:09:312021-06-25 23:09:33On The Zon
https://whatsthematterwithme.org/wp-content/uploads/2021/06/rickety-exercise-bike.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-06-13 19:24:482021-06-14 22:33:37Rickety Exercise Bike
Koko’s finally at Summer Camp. The frustration of being a disabled father during Covid-19 was intense. I have two hands but one isn’t very useful, leg is the same, so doing projects with either kid has been difficult. It feels like we’re about to turn a corner.
Getting My Confidence Back
I have been trying to get back the ability to drive again. I’ve been driving little drives every day. But yesterday, I drove 4 and half miles. I’m getting my confidence back.
Mel’s Shoe Clinic
I went to a cobbler, Mel’s Shoe Clinic in Castro Valley, to work on my AFO brace. He did a great job and it was a big revelation. It was fast, cheap, and easy, and I’ll definitely do it again.
Flip A Coin
June 1st, Koko’s birthday, is also national Flip A Coin Day. Go ahead and celebrate her belatedly.
https://whatsthematterwithme.org/wp-content/uploads/2021/06/at-the-cobbler.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-06-03 00:41:442021-06-03 00:50:15At The Cobbler
In this episode of the What’s The Matter With Me? Podcast, “Crossing Boundaries,” I’m going outside my comfort zone.
I printed the Amazon shipping label- I’m going to try selling some Hoppin Hot Sauce on Amazon, to tie my product to a strand of hair on the giant beast that is Amazon. I submitted my poetry to a poetry journal for the first time since high school. Some friends came over and I cooked the right amount, it wasn’t too stressful, it was a good example of the goals I discussed in Cooking While Disabled. It was good food and made for a good time. After receiving my certification from East Bay Paratransit, I got approved for the San Leandro Flex Ride program, and took my first journey to Galvan’s Market and bought a lot of meat. For my second journey, I went to Crimson Horticultural Rarities to get some indoor plants. Overall the Flex Ride experience was a mixed bag but I will try it again.
In this episode, I read two consecutive entries in the “What I had for dinner last night,” journal. The first is from the night I made the leeks, and the next comes from the following day, after having cooked a more successful meal and having a discussion with my therapist.
“Cooking While Disabled” means that I need to adapt my techniques in the kitchen so they work for my particular needs.
https://whatsthematterwithme.org/wp-content/uploads/2021/05/Cooking-While-Disabled.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-05-03 22:30:472021-05-03 22:31:57Cooking While Disabled
Welcome to the What’s The Matter With Me? Podcast, “Paratransit Certified”
In this episode, I get certified for East Bay Paratransit. I’m fully vaccinated, and I’m ready to go back to the gym and the radio station after more than a year off due to Covid-19. Paratransit will help me get there. Shout outs to my art teacher, who steps in and gives me a little validation. I read some things I wrote down.
Click on the different category headings to find out more. You can also change some of your preferences. Note that blocking some types of cookies may impact your experience on our websites and the services we are able to offer.
Essential Website Cookies
These cookies are strictly necessary to provide you with services available through our website and to use some of its features.
We provide you with a list of stored cookies on your computer in our domain so you can check what we stored. Due to security reasons we are not able to show or modify cookies from other domains. You can check these in your browser security settings.
Google Analytics Cookies
These cookies collect information that is used either in aggregate form to help us understand how our website is being used or how effective our marketing campaigns are, or to help us customize our website and application for you in order to enhance your experience.
If you do not want that we track your visit to our site you can disable tracking in your browser here:
Other external services
We also use different external services like Google Webfonts, Google Maps, and external Video providers. Since these providers may collect personal data like your IP address we allow you to block them here. Please be aware that this might heavily reduce the functionality and appearance of our site. Changes will take effect once you reload the page.
Google Webfont Settings:
Google Map Settings:
Google reCaptcha Settings:
Vimeo and Youtube video embeds:
The following cookies are also needed - You can choose if you want to allow them: