My name is John,

I’m 40 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.

I created the What’s The Matter With Me? Podcast to share what I’m going through.

Portrait

I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.

I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.

If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.

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Thanksgiving was a success. Movie review: “I’m No Longer Here.” The gym is mask-optional. People are likers; they want to like things.
  • Thanksgiving was a success.
  • Movie review: “I’m No Longer Here.”
  • The gym is mask-optional.
  • People are likers; they want to like things.
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The Plastication was yesterday. Thanksgiving is tomorrow. I’m trying to delegate and avoid stress.
  • The Plastication was yesterday
  • Thanksgiving is tomorrow
  • I’m trying to delegate and avoid stress
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We ran out of Original Flavor. I made vaccine appointments for the kids. I’m putting together a CD marathon for the radio.
  • We ran out of Original Flavor on hoppinhotsauce.com
  • I made vaccine appointments for the kids
  • I’m putting together a CD marathon for the radio
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We celebrated Halloween with our friends and their kids. Some things had changed, but it’s not too bad. Plus, cheating guacamole.
  • Everything changes, people get older
  • Newsletter about a new episode
  • New song: “Running for their lives”
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A meeting with my doctor brings me new understanding. I am on immunosuppressants. I am more likely to catch Covid-19 even though I am vaccinated.
  • I got a new primary care physician
  • Got the flu shot
  • Had a meeting with my doctor that convinced me that I am an immunosuppressed person
  • Been playing “Hamilton” tunes on the piano
  • Making dark, creepy music
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I went to the radio station, to the independent living center and joined the gym. I’m beginning to advance.

I went to the radio station, to the independent living center and joined the gym. I’m beginning to advance.

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Everything is receding like the ocean after the wave has crashed and it’s pulling your feet. The gym, hot sauce, supply chain- things are in recession.

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Everything is receding like the ocean after the wave has crashed and it’s pulling your feet. The gym, hot sauce, supply chain- things are in recession.
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I moved past my fear of driving by breaking it down into small steps and listening to my inner Phil Jackson.

I moved past my fear of driving by breaking it down into small steps and listening to my inner Phil Jackson.

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I miss having barbecues and I’ve got to get over it. Cat meowing in the middle of the night. Children are like lice.

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Hearing the sound of missing teeth. Night driving. Hanging out at Cato’s Ale House felt like a win.

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