My name is John,

I’m 40 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.

I created the What’s The Matter With Me? Podcast to share what I’m going through.

Portrait

I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.

I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.

If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.

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Interview

Thoughtline Interview

In this episode of the What’s The Matter With Me? Podcast, we’re presenting an interview with newly-elected San Mateo School District Board Member Ligia Andrade Zuñiga, who is a disabled wheelchair user. I interviewed her because I thought it was remarkable for a disabled woman to win an election. It originally aired Monday, December 28th from 6-7PM.on KFJC 89.7FM on the Thoughtline public affairs program. This material was developed to bring under-represented voices onto the air waves at KFJC, in order to “promote and increase diversity at the station.”

Powerful Representation

What Ligia says is very powerful, and it resonated with me, about how disabled people are invisible. My airname on KFJC is Hemroid The Leader. Please do not be alarmed. it is just an alias.

Connections

Interviewing Ligia was suggested to me by Alice Wong of the Disability Visibility Project, who we’ve covered before, and hopefully we’ll hear from again.

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Interview
Interview someone and learn about them

In The Habit

We’re nearing the end of four seasons on the podcast. Like I said last time, I’m thinking of changing or stopping it. For now, I’m still in the habit.

I recorded an interview with the activist Ligia Andrade Zuniga that I hope to air on KFJC.

Reflecting on the mental health epidemic that accompanies the coronavirus epidemic, the podcast takes an unexpected turn.

It comes back on track at the end, courtesy of the words of Marc Maron.

Cya next time. As always, get me via the Contact Form. Hasta luego!

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Lots of boxes

I’m thinking about changing this.

I started this podcast with a determination to try and understand who I was as a disabled person, to grow my disability consciousness. Now that I am on the cusp of relocation, I wonder, did I accomplish what I came for? Let me know what you think via the Contact form.

This episode quotes from the first episode of What’s The Matter With Me? Podcast, “Trying.”

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I’m going to a new place

Things are changing, from my home bookstore to the restaurants I’ll eat at. I feel positive about it, but I’m having anxiety in the face of so much change.

I think what I mean by “home bookstore” is the bookstore where I’ll go most often, every week or so.

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moving to san leandro

After two of my friends message me I realize that with my move to San Leandro, my support group will evolve. Which I manage not to mention in the episode, is totally scary!

I recorded most of the episode in the backyard, mostly off-the-cuff. The audio track features airplanes and windchimes.

STAY TUNED for extended shout-outs.

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We son some awards.

Bad news first: the kids are bad, they run away.

Hoppin Hot Sauce won some awards.

This week’s episode takes place in a cable car.

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Both

What’s The Matter With Me? Podcast

SETTING: Shopping Mall, Spooky Castle, “Run In The Wild” by Hot Mops.

The BAD: Trigeminal Neuralgia came back.

The GOOD:

Halloween is coming.

Click for transcript
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  • I got my computer back from the shop, and I’m back up and running again
  • Shout-outs to Etan Rechra
  • I made some production work for KFJC, featuring my buddy Jack Tar
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Thank you for tuning in to the What’s The Matter With Me? Podcast.

CLICK FOR TRANscript