I’m 40 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.
I created the What’s The Matter With Me? Podcast to share what I’m going through.
I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.
I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.
If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.
In this episode, I read two consecutive entries in the “What I had for dinner last night,” journal. The first is from the night I made the leeks, and the next comes from the following day, after having cooked a more successful meal and having a discussion with my therapist.
“Cooking While Disabled” means that I need to adapt my techniques in the kitchen so they work for my particular needs.
https://whatsthematterwithme.org/wp-content/uploads/2021/05/Cooking-While-Disabled.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-05-03 22:30:472021-05-03 22:31:57Cooking While Disabled
Welcome to the What’s The Matter With Me? Podcast, “Paratransit Certified”
In this episode, I get certified for East Bay Paratransit. I’m fully vaccinated, and I’m ready to go back to the gym and the radio station after more than a year off due to Covid-19. Paratransit will help me get there. Shout outs to my art teacher, who steps in and gives me a little validation. I read some things I wrote down.
In this episode of What’s The Matter With Me? Podcast, I receive a message from a psychiatrist who identifies some of the hurtful things my son was saying a couple episodes ago in Won’t Be Ashamed as relating to the Oedipus Complex. She thinks maybe he’s having Oedipal thoughts as he begins to identify with me, and that makes a lot of sense.
In this episode, we got vaccinated for Covid-19 at the Oakland Coliseum after hearing VP Harris had gotten involved there. The kids went with us, we drove up, it was easy, and when it was over it was a big relief. Plus, What I Had For Dinner Last Night and more.
https://whatsthematterwithme.org/wp-content/uploads/2021/04/Spring-Vacation-Is-A-Hoax.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-04-06 01:17:382021-04-06 16:01:36Spring Vacation Is A Hoax
In this episode, my son tells me that he wants a new dad, one that isn’t disabled, who doesn’t use a wheelchair or a cane, and who is able to cross the stream by balancing on a fallen eucalyptus tree. I think it may be more-or-less normal for a kid to wish they had different parents, but it felt especially heavy that my kid was trying to hurt my feelings for having multiple sclerosis and being disabled. I pointed out that he was disability shaming me, that it was as if I had told him that I didn’t like being around kids because they don’t have driver’s licenses, or know how to multiply and divide. My point was that there are things that we don’t have control over and that it’s unfair to blame us for them. I think he heard me, the wheels began to spin, and maybe he’ll think this over.
the heat is working again
my son tried to hurt and shame me for being disabled
need to teach disability consciousness to my children
i went for a ride in my wheelchair with a friend for the first time and it was good
i’m using a sleep apnea CPAP device to sleep at night, continuous positive air pressure. my energy is better
https://whatsthematterwithme.org/wp-content/uploads/2021/03/Wont-Be-Ashamed.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-03-26 18:15:522021-03-28 18:14:06Won’t Be Ashamed
https://whatsthematterwithme.org/wp-content/uploads/2021/03/I-moved-to-San-Leandro.jpg25602560Johnhttps://whatsthematterwithme.org/wp-content/uploads/2021/03/wtmwm-2021-Copy.pngJohn2021-03-07 02:39:502021-03-07 02:41:37I moved
In this episode of the What’s The Matter With Me? Podcast, we’re presenting an interview with newly-elected San Mateo School District Board Member Ligia Andrade Zuñiga, who is a disabled wheelchair user. I interviewed her because I thought it was remarkable for a disabled woman to win an election. It originally aired Monday, December 28th from 6-7PM.on KFJC 89.7FM on the Thoughtline public affairs program. This material was developed to bring under-represented voices onto the air waves at KFJC, in order to “promote and increase diversity at the station.”
What Ligia says is very powerful, and it resonated with me, about how disabled people are invisible. My airname on KFJC is Hemroid The Leader. Please do not be alarmed. it is just an alias.
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