My name is John,

I’m 43 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.

I created the What’s The Matter With Me? Podcast to share what I’m going through.

Portrait

I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.

I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.

If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.

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Omicron Isn’t Milder For Everyone

Reading op-eds, cooking borscht and wading through unpredictability

There’s a good article in the Times today about how immunosuppressed people like me remain at risk for covid even after vaccination, booster etc. It’s scary and presents big problems for me that aren’t going away.

I’m midway through making Hot Ukrainian Borscht.

I think People like watching sports because It’s something that has never happened before.

Everything is happening for the 1st time ever, and in sports its the same but it goes into the record books.

Its unpredictable… within a tightly regulated framework: the Rules.

Navigated by highly skilled individuals. One swing of the bat or the golf club is much like another but the results are night and day

Maybe that’s why people listen to the What’s the Matter With Me? Podcast.

Or theres maybe another reason, cant be too sure.

Lots of shoutouts for the new year, to the people who sent cards. I can’t remember the lady’s name, but I would officiate the wedding.

Remote work is like, you get a good job, go in to the office, its normal, it feels like a success then one day they send you home, like “devote half your house to us and dont come back here until we tell you” and they keep telling you to come back and then cancel at the last minute all “two weeks- i swear! I just need two weeks to straighten things out”

Its coronavirus day 7,000,000, again. just like every day

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Happy New Year, 2022. The guy cutting lumber at Home Depot with his sunglasses upside-down said, “Don’t cry, smile. Because we are still alive. Sleep good, be happy.”

I wear the same shoes all the time because they fit into my AFO (ankle-foot-orthotic) brace. In this episode, I let off some steam about it.

  • I wear the same ####ing shoes all the time
  • I used to live in New York City and ride the subway looking at everyone’s shoes
  • I’m a shoe diva-sneakerhead-Christian Louboutin-Nike Dunk
  • I’m not a foot pervert! I just like shoes. There must be a line somewhere
  • Actually I wear 2 pairs of shoes. I wear Minnetonkas when I ride in my wheelchair. I got them at Mel’s Shoe Clinic
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I went back to the gym and only some people wore masks. Guess who? PLUS, Dad Bod Rap Pod, “People With Disabilities” movie review.

The time has come for the entertainment industry to audition and cast actors with disabilities to play leading roles portraying disability… American society no longer finds it acceptable for white actors to play black, Asian or Hispanic characters. It is equally unacceptable and offensive for able-bodied actors to be cast… in the roles of characters with disabilities.

Jay Ruderman, President of the Ruderman Family Foundation
  • People are likers
  • I’m getting my #7 and #9 teeth extracted and posts put in tomorrow. I’m freaked out
  • Dad Bod Rap Pod, a hiphop podcast from San Jose, held a record swap in East Side San Jose
  • A streaming “People With Disabilities” section leads me to think about representation in movies
  • I went back to the gym and wore a single-use paper mask
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Thanksgiving was a success. Movie review: “I’m No Longer Here.” The gym is mask-optional. People are likers; they want to like things.
  • Thanksgiving was a success.
  • Movie review: “I’m No Longer Here.”
  • The gym is mask-optional.
  • People are likers; they want to like things.
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The Plastication was yesterday. Thanksgiving is tomorrow. I’m trying to delegate and avoid stress.
  • The Plastication was yesterday
  • Thanksgiving is tomorrow
  • I’m trying to delegate and avoid stress
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We ran out of Original Flavor. I made vaccine appointments for the kids. I’m putting together a CD marathon for the radio.
  • We ran out of Original Flavor on hoppinhotsauce.com
  • I made vaccine appointments for the kids
  • I’m putting together a CD marathon for the radio
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We celebrated Halloween with our friends and their kids. Some things had changed, but it’s not too bad. Plus, cheating guacamole.
  • Everything changes, people get older
  • Newsletter about a new episode
  • New song: “Running for their lives”
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A meeting with my doctor brings me new understanding. I am on immunosuppressants. I am more likely to catch Covid-19 even though I am vaccinated.
  • I got a new primary care physician
  • Got the flu shot
  • Had a meeting with my doctor that convinced me that I am an immunosuppressed person
  • Been playing “Hamilton” tunes on the piano
  • Making dark, creepy music
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I went to the radio station, to the independent living center and joined the gym. I’m beginning to advance.

I went to the radio station, to the independent living center and joined the gym. I’m beginning to advance.

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Everything is receding like the ocean after the wave has crashed and it’s pulling your feet. The gym, hot sauce, supply chain- things are in recession.

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Everything is receding like the ocean after the wave has crashed and it’s pulling your feet. The gym, hot sauce, supply chain- things are in recession.