My name is John,

I’m 43 years old, husband, father, small business owner, radio DJ, podcaster, and I have Multiple Sclerosis.

I created the What’s The Matter With Me? Podcast to share what I’m going through.

Portrait

I believe in using the transformational power of creativity to achieve social justice. Joseph Beuys once famously claimed that, “Each person is an artist.” In the words of the Spanish poet Antonio Machado, “Wanderer, your footprints are/ the path, and nothing else;/ wanderer, there is no path,/ the path is made by walking.” My work consists of public interactions that create new conditions in the community.

I have multiple sclerosis and that affects my life and work in many ways. I am the host of What’s The Matter With Me?, a podcast where I share my experiences, challenges and triumphs as a patient with MS. The podcast develops my Disability Consciousness and bridges me with my caregivers, doctors, the disabled community, and community-at-large.

If each person is an artist, and we create the road by walking, then it is up to us to create the world we want to see.

rolling around the TL cover

Welcome to “Rolling Around The TL” on the What’s The Matter With Me? Podcast

Lots of people use wheelchairs in San Francisco’s Tenderloin district, a pretty rough area between Union Square and Civic Center

Shout outs

  • Shout outs to rocky
    • she’s listened to every episode
  • Shout outs to the people listening through the past episodes
  • Send me a n email via the contact form and I will give you a shout out that is quite possibly the best one you’ve ever received and the maybe best that you ever WILL receive

Dad Butt

  • Dad butt-dialed me again

Travels by wheelchair

RF Rhizotomy Number 2

  • Had trigeminal neuralgia face pain 5am Wednesday morning & had more drugs,, surgery one day away
  • I had surgery and have been clear from major pain since then. But I am still on pain drugs.
  • My nose has triggered some zaps but they are lesser in intensity than they had been, with the caveat I’m still on some medication

I Can Go Down

  • My AFO brace is broken and it’s very hard to walk.
  • I have to walk all on my heel, and if I put my weight on the outside of my foot or on the front Of my foot I can go down.

Rolling Around The TL

ride in rotary park
  • I went to the deerhoof show in my wheelchair
  • Rolling in the TL, I saw a lot of wheelchairs, but mine was the only one that was electric
  • We ate at Osha Thai which was accessible, a blast from the past, and sadly due for an upgrade
  • We got into the car after midnite- Rock & Roll!
  • I called ahead to the Great American to let them know I’d be coming in my chair, they reserved me a table behind a pillar against the wall. It had poor visibility, but decent sound
  • I started focusing on the audience. Nowadays people wear their pants wider and hemmed higher

This Week’s Selfie

selfie
Rolling Around The TL Selfie

poop burrito cover

Welcome to “Poop Burrito” on the What’s The Matter With Me? Podcast

The tortilla is fine. Maybe you can save the lettuce. In a poop burrito, you have to go through the layers.

My trigeminal neuralgia pain came back and so this episode is a bit like a poop burrito. I was in the hospital last weekend, and they changed up my medications to get me out of pain. A couple of days ago I saw the surgeon and I’m going to have another rhizotomy next week.

Big Shoutouts

  • Shoutouts to Nathan. His message: “Just wanted to say congratulations. On April 28th the what’s the matter with me Podcast will be 6 years old! Keep it up buddy. And Hoppin Hot Sauce is the best sauce in the world.”

I did one thing right

  • You couldn’t sing to March’s theme song candidate

Speaking the unspeakable

  • You are not allowed to call yourself a Bohemian– It’s not a thing you can call yourself. Lazy hippie is more like it

Round and vacant

  • The security check said, “Click all the pictures with a donut” but it seemed like some of them were bagels

I Was That Guy

  • When my family was in Japan, the kitten didn’t come in one night. Then, I got in my wheelchair and rolled around calling for my cat.

Inequality

  • Of the remaining Beatles that are still alive, we have the best one and the worst one. JK *ducking*.

Boil Water Warning

  • No one takes Cam Likely’s phone calls

Smooth sounds

  • I want to hear elevator music, and I walk out and my wife is playing some violin concerto

Competition begins

  • It’s little league baseball season again and the game is a little more recognizable, pitchers are starting to pitch better, more towards the plate

Sonny in Europe

  • Its 1959, and Sonny Rollins is going to Europe. Back in the states, he’s jamming with Bob Dorough & Mose Allison at the jazz loft. Then, he goes on sabbatical and climbs onto the Williamsburg bridge to practice without disturbances.

Visual Rhyme Time

This Week’s Selfie

poop burrito selfie
Poop Burrito Selfie
a pint is a pound cover2023

Welcome to “A Pint Is A Pound” on the What’s The Matter With Me? Podcast

Saying

  • A pint is a pound the world around

Kids Are Gaslighting Me

poisonous chemicals and vomit
What my car smells like
  • My kids say I smell like poisonous chemicals
  • They say my car smells like vomit
  • They are the only people to vomit in my car, and I used cleaner to clean it up, so this is gaslighting and I should threaten them with cancellation

Know Your Cobbler

Ancestral Lands

  • My family went off to Japan

Getting The Most Of Zing’s Spring Sale

  • On the last day of their spring sale, I put in Zingerman’s cheese order number 2, for parmigiano reggiano & gouda
  • It’s been a good spring with delicious cheese

Reading About Disability

Life and times of Sonny

  • Sonny Rollins has been released from jail, gone to Kentucky for the cure, joined Brown-Roach Inc., and recorded Tenor Madness

March Theme Song Candidate

  • Theme song candidate “Song V”

The Scary Neighbor

  • Fedex guy brought the wrong package, and it was for my neighbor across the street
  • I opened it because I thought it was the new cheese
  • So I loaded it into my wheelchair and went over there

Birds of prey

  • At the owl cafe

Bachelor life

  • Keeping the metal food bowl full of chicken sausage tomato pasta
  • Watching the Warriors win important games and missing my family

Travel Handle

Suction cup grab bar seems to be missing the crucial element of stability, but on the other hand, it’s a cool novelty item and it might even work a little bit

RIP Sakamoto

  • RIP Japanese composer Ryuichi Sakamoto, he made pretty cool music for The Revenant along with myriad othter films, games, and projects

Checkup

  • Parents came over. Mom scooped the litter. Dave helped me go fill the propane tanks. We got a baguette and 2 cookies

Endorsed By No One

  • The thing about Orthotic Footwear is that it is not endorsed by anyone. Except doctors

Walking Badly

  • Tiger Woods walking badly at the Masters
  • ESPN’s Michael Wilbon said he didn’t want to see Tiger moving this way, but I wonder how much that will matter to him

This Week’s Selfie

The world around
cover

Welcome to “Multiplex and Talent Show” on the What’s The Matter With Me? Podcast

This week, I used my wheelchair to go to the multiplex in Dublin and the talent show in the auditorium at my children’s elementary school. The movie we saw was “Inside” with Willem Dafoe and the elementary school talent show had a few truly bizarre, fun memorable moments.. Using my wheelchair made it possible.

Spicy Nut and Pretzel Mix

  • Whipped up the David Lebovitz snack mix because our dinner guest brought an extra pie. I think you could say it was burnt, but it’s still so addictive that it didn’t matter – it all gets eaten every time

Welcome in

Big Blood

At the Multiplex

  • I went to the Regal Hacienda Crossing Spaceport in Dublin. It is a multiplex at an outdoor mall
  • Shout out to Anjela the hair-cutter who told me she went to movies there when she was in high school
  • I went with Nami to the movie in my wheelchair. I like going to the multiplex in a wheelchair because multiplexes are big and huge and I don’t know if I’d be able to make it otherwise
  • We saw the movie Inside with William Defoe
  • It’s about an art burglar who gets trapped inside a smart house which more-or-less tortures him and features the destruction of millions of dollars worth of of art and furniture.

Kids Got Talent

  • I went to the children’s talent show in my wheelchair, but beforehand i emailed ahead of time to ask if they would save a space for me, which was no problem. they saved a space for me at the front of the room and a really sweet girl wearing a tap outfit helped me to get settled
  • There were great embarrassing song and dance routines, solo Hamilton, martial arts, gymnastic cartwheels I & II, Water Under The Bridge interpretive dances and SO much more. It was more interesting than I thought it would be.
  • My son told me he had a crush on a girl who did a gymnastic routine. When his mom asked why, he said it was because she “ran really fast”
  • “A pint is a pound the world around”
Indie rockers weigh in

Only one thing left

  • subscribe to the whatsthematterwithme podcast and you’ll get a very fancy nice email version of the podcast every time a new episode comes out its very handsome be sure to click subscribe right at the top of the page, just a name and your email is all we need to get goin and then youll always get the selfie

This Week’s Selfie

selfie
In the studio
car accident cover

I got in a car accident where I got rear ended, wasn’t injured and the insurers agreed that I was not at fault. This is a blender episode, with lots of little segments that all go in there.

Blender Episode

This episode contains lots of different segments, all going into the blender like fruit goes into the smoothie.. Stay tuned for lurid stories of rampaging young adults and their dangerous car accidents, but let’s start our blender episode back in the 1990s at Jamba Juice.

Juicy Tale

  • Do you go to Jamba Juice? My first thought was that I went there in the nineties, and that I don’t go there anymore.
  • Kind of like Noah’s Bagels, I feel like Jamba Juice belongs to the 90s the way Orange Julius belongs to the 80s
  • But I go there all the time because like El Pollo Loco, you can trust it, if you don’t trust anything, Jamba juice will feed me I get the peanut butter smoothie
  • Jamba Juice was originally called juice club
  • Began in San luis obispo in 1990
  • It was renamed in 1995.
  • In 1995, founder Kirk Perron swapped out Juice Club for Jamba Juice, which is a play on the African word, jama, which means “to celebrate.”

Music & Culture Festival

  • Like Carijama, the dormant Caribbean music and culture festival in Oakland’s Mosswood Park
  • Ended in violence every year 2001-4 after existing since 86

Making The Scends

  •  I have been using lent as an excuse to go to the fried fish place in San Leandro on 14th street Scends

Crate Digging Expedition

Session In Paris

  • Masahiko Togashi was a jazz drummer who sustained a spinal injury in 1970.
  • After his injury, Togashi had a custom drum set adapted so he could play drums using only his hands
  • At Stacks, I found a copy of 1979s Togashi / Cherry / Haden “Session in Paris – Song of Soil” with a picture of Togashi in his wheelchair on the back, something I haven’t seen very often on a record, so I bought it right away.
  • If you’re looking for a copy, they’re on Bandcamp

Pole Cane Stick

  • Got a new walking stick made of carbon fiber, the old one was aluminum.
  • The weight difference is like picking up a twig vs. blade of grass

Creative Destruction

I was on vacation in Palm Springs, Calif., on Nov. 7, 2021, when I awoke with the cacophony of a dozen dial-up modems blaring inside my head. Confused and alarmed, I called out to a friend staying in the room next door and could hardly hear my own voice. When he responded, I heard almost nothing at all.

The reason for my sudden hearing loss and the persistent ringing in my ears wasn’t immediately obvious, to me or to the emergency room doctor who examined me that morning. I hadn’t stood too close to the speaker at a concert or hit my head in some traumatic accident. I simply had gone to sleep with my hearing intact and, come morning, it was gone.

My life since that day has been difficult to describe, though the words I return to most often are “disorienting” and “humbling.” I spent months shuffling from one medical specialist to the next for a battery of tests and treatments. I eventually started wearing hearing aids and learning American Sign Language. And, perhaps most challenging of all, I confronted a new identity — disabled — that often leaves me feeling vulnerable.

At first, I also felt very alone. No one hands you a guidebook when one of the fundamental senses on which you innately rely is revoked without warning. Even the most attentive physicians are primed to focus on your physical symptoms, not the upheaval that a sudden impairment brings to your personal and professional life, nor the erosion it causes to your sense of self.

Steven Overley, “I had decades to make peace with my sexuality. My disability is a different story.” NY Times Subscriber-only newsletter (EXCERPT)
  • Acquiring a disability feels like forced creative destruction
  • Steven Ozerkey was guest writer for Frank Bruni’s newsletter last week and shared his perspective on acquiring a disability

‘Eyesight Compromised. Could Go Blind’

There is virtue in stoicism, but there is also danger in what strong people can hide. His own situation has made him even more keen to understand the other whose public face contradicts a private suffering. He proposes that each person should have a sandwich board listing her pain and how she adapts: “Imagine that our hardships, our hurdles, our demons, our pain were spelled out for everyone around us to see.” Bruni’s sandwich board would read: “Eyesight compromised, could go blind.”

You ask, why announce your troubles? Doesn’t everyone have something? “Well, yes. Tell us anyway,” I think Bruni would reply. Maybe if we knew, we might slow down, turn and fumble toward each other. Perhaps, then I could say that you’re not alone, and I’m rooting for you, because I am.

Min Jin Lee
  • Reading Min Jin Lee’s review of The Beauty Of Dusk by Frank Bruni, his account of impaired vision after suffering a stroke

AI Still Not Perfect

  • I asked openAI to summarize my podcast, and it said @johnleeclark hosted it, which isn’t true I host it. I appreciated the compartisom, and I’ll keep my eye on Clark, a DeafBlind poet.
Approach
By JOHN LEE CLARK

I spin around in the middle of the corridor. My cane taps against four elevator doors. I have pressed both the up and down buttons because there is a fifth elevator door. If I tried to tap all five I would come to closing doors too late. Let the fifth door open to a ghost. Let it be confused and close again.

Source: Poetry (December 2021)

RIP Judy Heumann

  • RIP Judy Heumann, who passed away on Saturday March 4, 2023 at 75 years old
  • She changed the way we think about disability, or the better. What an inspiration

Chimpanzeeing it

  • Since I got my teeth back I’m having to learn to use them to pull things into my mouth and not my lips. For the moment i’m kinda chimpanzeeing it

Shout outs

  • Shoutouts to Claude Hopper – congratulations on being awarded the Sal 9000 spot, Saturday mornings 6-9AM PST on 89.7FM kfjc.org. To get the ball rolling, I request Tapper Zukie

In the kitchen

  • Made a simplified meatloaf & cheesy polenta

Disabled Japan

  •  In Japan for example, it isn’t said that, “I am hot.” Instead you might say “Heat, there is.” It’s a group culture, which ios different from the West, where we live in an individually-oriented culture. In light of this, I have to reorient myself and figure out for myself.
  • How to exist as a disabled person in Japan? Rather than saying, “I am a disabled person, and they will accommodate me.”

Youth Gone Wild

  • I got rear ended and although it wasn’t my fault (the guy in front showed down, then I showed down, then I got rear ended) by a 20 year old driving his parents BMW which sustained a lot of front end damage
  • The kid jumped out of the car, cursing, yelling. At himself, not me, but it’s freaky when people start doing that, because it feels like they could turn it on you att any moment. But it was cool. I was bigger than him and an adult.
  • I am always afraid when I get in a car accident that somehow it’s going to lead to me having my driver’s license taken away, because I’m disabled.
  • I thought back to the Positive experience I had in the Hayward DMV, And I thought to myself, “I am totally allowed to be here,” and it got me through

Youth Gone Wild Pt. 2

You made it this far

  • Subscribe to the What’s The Matter With Me? Podcast and you’ll get a very fancy nice email version of the podcast every time a new episode comes out, it’s very handsome, be sure to click subscribe right at the top of the page, just a name and your email is all we need to get goin and then you’ll always get the selfie

This Week’s Selfie

selfie
Accident Survivor
I Got My Teeth Back cover

Welcome to “I Got My Teeth Back” on the What’s The Matter With Me? Podcast

I went to the dentist, and he attached some teeth to the posts the periodontist implanted in my jaw. It’s been almost two years since I had buck teeth in my mouth, and it is a big change. I made a lot of squash soup, adapting the method for one hand, and I’ve included the recipe in this post.

Shout outs

  • Shout outs to Klaudhopper, who asked about Hoppin Hot Sauce stickers
  • Shout outs to Tall John who called me up after I tweeted about not going to Japan

Teeth

teeth

These are the images I gave to the lab that fabricated my new teeth when they asked for pictures of what my old teeth used to look like.

teeth 2

Goes By Cam

  • Scam Likely probably goes by Cam
  • He calls everyone and no one takes his calls, on the answering machine he’s like hey it’s me, Cam- Cam Likely

Brain Lesions & Disease Progression

Slow

  • I had infusion which is a really long slow injection

Roasted Squash Soup

Recipe by John Hoppin

Roasting winter squashes face up concentrates flavor, and using convection during the roast increases tasty browning reactions. Using an immersion blender makes it easier to puree using only one hand. We eat leftovers for lunch with a grilled cheese sandwich and Hoppin Hot Sauce.

Servings
8 Servings

Cooking Time
75 minutes

Ingredients

  • 3lbs winter squash, cut in half, seeds taken out
  • 4T unsalted butter
  • Yellow onion, chopped
  • 1/2 teaspoon nutmeg
  • 1/2 teaspoon cinnamon
  • 1/4 cup maple syrup
  • salt and pepper, to taste
  • 4 cups stock

Instructions

  1. Preheat oven to 350 F {or 325 if using convection).
  2. Roast pumpkins until easily pierced with a fork, at least 1 hour. Let cool, then scoop out the flesh.
  3. Melt the butter in a large, heavy-bottomed pot over medium heat and once it is foamy, add the onion. Cook 5 minutes until soft.
  4. Stir nutmeg & cinnamon into the onions. When the smell permeates the room, add the stock.
  5. Add squash flesh, bring to a good simmer, stirring.
  6. Remove from heat. Leave to steam for a couple of minutes.
  7. Puree thoroughly with the immersion blender, using a stirring motion. Be extra-thorough to find any chunks of squash or onion that may be hiding under the surface.. It should be thick. I don’t do any extra sieving, so I want to take my time and be sure it is well-pureed.
  8. Add maple syrup, and season to taste with salt and pepper.

Sonny At Rikers

  • Sonny Rollins got 1-3 years for having a gun. He was searched without cause. In 1952 he was at Riker’s Island. He arranged hymns for a hip chaplain at the Protestant Mission House, and he was paroled September 11, 1952

Theme Song

  • The theme song candidate for this month is less jazz & more industrial
  • I am considering whether it might have lyrics, maybe it’ll sing the intro part

Tiny Tooth Wrench

When they reattached them, the radio played Lionel Richie’s 80-s smash hit “Hello”. Neither the dentist nor his assistant knew the song. Turned out that the dentist was born in 1987.

teeth 2
  • The dentist used a little mini Allen wrench to attach them to the bases. there was pressure, it made my eyes water
  • I have teeth now, so I ate Ramen and spaghetti for the first time since my bridge broke and took my front teeth with it in August 2021

My Gumbo History

  • Cousin Emily came over for gumbo on Saturday
  • I made gumbo at the Rockridge Fish in Market Hall in 2003-4

Last night for dinner

  • i made red sauce italian sausage with leeks

This Week’s Selfie

I Got My Teeth Back Selfie
I Got My Teeth Back
Smooth Like Lotion

Welcome to “Lotion” on the What’s The Matter With Me? Podcast

In this mini-episode, we check out a new candidate for the theme song for Season 8, a song called “Lotion”, because it’s a smooth song, smooth like lotion is. Kind of G-funk, smoothed out 90s thing. Maybe it will be the theme song for next season.

concert at yoshi's cover

Welcome to “Concert At Yoshi’s” on the What’s The Matter With Me? Podcast

I went to see a jazz concert at Yoshi’s in my wheelchair, and it was pretty easy, for a change. I made a lot of vegetarian bean chili ahead of a trip to the ranch, and the vegetarians approved of it.

Shout outs

  •  Shout outs to Claude Hopper who listened to Wheelchair Dining Experience and wrote in to laugh about the banana salad
  • My mom told me that I should have complained about the restaurant experience, but I have worked in restaurants for a long time and I think that things can go wrong very easily, so I declined. Kind of a cop out. I was like it’s not gonna make my experience any better to complain.
  • Write me an email john@hoppinworld.com and I will give you a shout out, perhaps the best shout out you will ever have. What are you waiting for? Send me an email john@hoppinworld.com
  • Mom reminded me how the meal was like a car crash and i couldn’t look away because It was like I was driving and I crashed my car. Maybe I was like a passenger in a taxi where the driver got into a horrible accident and killed someone and was at fault I was not at fault but I experienced it. And I paid for it. Rest in peace to that dinner
  • I’ll complain next time.

Ads R Cheesy

  • It’s still true that I’ve never had an advertisement on WTMWM?, but I was watching TV with my son and they had an advertisement for this nut company and I have to say that I order nuts and raisins a lot. they also sell cheese powder and I’m interested in that. so if the nuts people come calling, I might do it, for the cheese powder

Eight Cans Of Beans

big pot of chili on the stove
Chili
  • I made a gallon and a half of bean chili, to bring to the ranch. it got good reviews from the vegetarians who ate it up. I wanted to see if making vegetarian chili from canned beans was possible, and it worked out.
  • My buddy grilled some carne asada and onions, which mixed into the bean chili just right, lending good meaty flavor and satisfying some more primal urges.

Dave Holland Trio at Yoshi’s

Instruments
Instruments on the stage

Monday February 20, 2023

Dave Holland, bass
Kevin Eubanks, guitar
Eric Garland, drums

  • From jam band to nihilistic noise rock.
  • Eubanks is a natural sideman and laughs at everything
  • This jazz concert at Yoshi’s was accessible in my wheelchair
  • I just had to call in the afternoon to let them know I was coming that night, and they reserved a table for my wife and I
  • They gave us a good table with a clear vantage point and we enjoyed the show. We were not off to the side, or around the corner. It was easy to get to my seat, and I had a clear path to the bathroom which was useful because i had two whiskey sours

Spatula Debates

 spatula

Spatula appears in English for the first time in 1525, when it morphs from being a weapon to a utensil most commonly used at apothecaries. Today, it describes any cooking tool with a long handle and a thin flexible blade.

Source: 8 Common Spatulas and How To Use Them

  • We got into a debate during the making of chili about spatulas: are they for smoothing things out, or flipping them.
  • Turns out, there are a lot of different things that you could call a spatula

Domestic Things

  • We received the bed and the fridge
  • The mattress is not a lumpy nightmare
  • The fridge is keeping things cold, but well short of freezing

I Drove Them

  • I drove the kids to presidents week camp this morning bc my wife was in the office
wheelchair dining experience cover
I went out for a wheelchair dining experience and it was a comedy/tragedy of errors

Welcome to “Wheelchair Dining Experience” on the What’s The Matter With Me? Podcast

In this episode, I rolled out to eat with my wife for a wheelchair dining experience  and it was a comedy/tragedy of errors. It was supposed to be a fine dining restaurant but the experience fell short in a lot of ways. I’m so starved to get out that it didn’t stop me from having a good time, but I don’t think I will be back.

Press

Mention from the MS Foundation
  • The multiple sclerosis foundation tweeted about what’s the matter with me Podcast- they are a loud voice in the community, and I feel very seen.

Shout-Outs

  •  Not Quite Twice My Age: Dad is celebrating his 75th birthday cruising the Bahamas
  • Swing By: Chris Parachini is in Puerto Rico but he’ll make it to CA someday.

Tag > Slap

Date Looms Large

  • Does the date of MS diagnosis loom large? For me, the answer is probably a no, even though I haven’t forgotten it. I just haven’t given it much weight.

Unprecedented and Unique Dinner

  • Dinner experience in my wheelchair, it was a singular experience
  • When companies/products/marketers have come to me asking to advertise on WTMWM? I have refused.

Big Question I’m Always Asking

  • How can fatigue and achievement coexist?

Lent

  • Friday fish from Scends: snapper, shrimp, fries, mac n cheese, coleslaw, corn bread hot sauce. The kids liked it.

Sam Kinison Auto Parts Jingle

  • I made the Sam Kinison auto parts jingle

Bad Old Ideas

Pizza Problem

  • Bluebird Pizzeria in San Leandro is the only bona fide pizza in town, but they’re closed on Monday And they Sell out on Friday and Saturday nights, so you can’t even get a take away order placed at 7 o’clock. Its a little place& lotsTogo- no delivery. Guess I’m just ranting about there Isn’t enough pizza in mytown

Just Chili-ing

  • Im making vegetarian bean chili

This Week’s Selfie

Chin Music
white elephant sale cover
Only Happens Once A Year

Welcome to “White Elephant Sale” on the What’s The Matter With Me? Podcast

In this episode, I went to the annual White Elephant Sale in my wheelchair and thought about my identity, identity politics and representation.

Fishy Yellow Mess

  • Turmeric supplement broken bottle
  • Nami said getting an apology from a chatbot is unsatisfying. She said it’s because you don’t feel magnanimous accepting the apology of a robot.

Weird junk

  • white elephant sale was accessible in my wheelchair. Some parts were very tight, but I made it work. That place is full of great junk

Still toothless

  • I thought I was gonna have my teeth, and I don’t have my teeth (yet)

Fluid Identity

  • I have changed my identity and become a disabled person and in that way I understand something about intersectional identity
  • There are People that change their identity on purpose. I feel some kinship with them because my identity has changed, even though I didn’t do it on my own.
  • Viewing others with unmarked male gaze is no longer possible
  • I used to think that identity art was silly, because I questioned its relevance to art.
  • My thinking about the importance of identity, identity art, and identity politics has grown and changed just as my identity has grown and changed through maturation and enduring chronic disability

Mayhem Special

  • I’m dreaming up a Mayhem special for KFJC about disabled musicians. Something featuring disabled artists like Cedell Davis, Beethoven, Rahsaan Roland Kirk, Stevie Wonder, Blind Uncle Gaspard, Israel Vibration, Ian Drury, Dax Pierson, and more.

This Week’s Selfie

White Elephant Sale  selfie
White Elephant Sale Selfie