Tag Archive for: wheelchair

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I made it through surgery- artist Gary Cannone preview- Helen Garner on fate- awkward dinner party conversation.

Welcome to What’s The Matter With Me? Podcast, “Body Horror”

Cool episode! I made it through a surgery with all the hallmarks of body horror: zombie anesthesia, facial electricity and a burning nerve. David Cronenberg will be perfect to direct the movie version. Plus, artist Gary Cannone interview preview- Helen Garner on impositions- an awkward dinner party conversation.

  • We are running out of Hoppin Hot Sauce on the zon, because I misread a figure on the inventory report.
Gary Cannone
  • Gary Cannone interview preview
  • I want to learn to write hilarious poetry in Japanese but apparently that’s not a sensible idea

Some very dear friends of mine had a three-­year-­old son who was profoundly autistic. They didn’t know what was wrong with him, and there was no name for it back then. He couldn’t really speak, and he didn’t know any words, but songs would reach him where other things wouldn’t, and he had a pure little voice when he sang. It interested me to see how his parents lived around this huge duty that had been imposed upon them—­to see how an act of fate like that would scour you of all your triviality. You’d have to find something in yourself that was much deeper than what most ­people would need to find.

Helen Garner
  • Helen Garner on autism, about trivialities in the Paris Review
  • Chronic illness erases people- thank you for listening to the What’s The Matter With Me? Podcast, an anti-erasure strategy
  • I had RF rhizotomy surgery and I finished it
  • It remindeed me of David Cronenberg/”body horror”
  • I went through it and now it’s over
Grape Ice Cubes
  • Now I can chew gum without pain
  • I chew grape ice cubes gum
Farro
  • I went to Berkeley Bowl, and did a lot of maneuvering to get farro in bulk. I knew it would be pretty wild.
  • I went to a dinner party and I felt uncomfortable for reasons I do not fully understand
  • Friends, food, conversation. I think I am not used to it.
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I went for a walk with Koko and I got more than I bargained for

Welcome to Season Six, Episode 33, “Wheelchair Tipped Over

My wheelchair tipped over. I was on a walk with my daughter but it didn’t seem to scare her too much– we went to the swings and she had a good time.

  • My name is John Hoppin, don’t wear it out.
  • My wheelchair tipped over
deplatforming hits home

Death of a Statesman

  • My wife was like, “I don’t think I knew that Gorbachev had died. I was like, “We did that last week. That’s why you need to subscribe to What’s The Matter With Me? Podcast. So you don’t miss anything.”
  • Our listeners know about everything

Organic Hellfire

  • I had the worst trigeminal neuralgia pain – from my mouth up to my eye around my eye out to my ear. Spasming organic hellfire that sent me scrambling for more medication and sobbing under the covers.

#CIL50

  • #Cil50 is happening in October at the Berkeley Center For Independent Living.
  • I’m interested to get a booth to promote What’s The Matter With Me? and sell Hoppin hot Sauce to the disabled community.
  • I was at a friend’s house and they were grilling burgers and the podcast came up because we were talking about Cil50

Prediction?

  • Covfefe was covid

Security

It Happened Fast– My Chair Tipped Over

  • My wheelchair tipped over in the park
  • I was counting critters with my daughter Koko and wasn’t paying attention
  • The wheelchair bottomed out when it went off the edge of the concrete where there was a couple inches of gap between the dirt and the concrete
  • I was ejected from the chair and ate it to some degree- just a couple band-aids were needed in the end
  • Bystanders came running and helped me up and got me back in the chair
  • My daughter ran away when the people came running to help me, but she seemed to realize they were helping me. It didn’t seem to scare her too much– we went to the swings and she had a good time.

This week’s selfie:

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It was 95 degrees out
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In this episode I battle face pain to go to a birthday dinner, take a family train trip, and have a date at the movies.

Welcome to the What’s The Matter With Me? Podcast Season 6, Episode 30, “Birthday Dinner.”

In this episode I battle face pain with varying levels of success to go to a birthday dinner at Trader Vic’s, take a family trip to the Embarcadero, and have a date at the movie theater.

Shout outs

  • Shout outs to Jersey Girl who used to work with Judy Huemann

Birthday Dinner at Trader Vic’s

Skate Spot

  • Rode the BART to Embarcadero to watch kids skate off the stairs
    • Market street Elevators
    • I was wearing my “SECURITY” t-shirt- from my Halloween costume. Lady came up asking me to defuse a situation with a guy on the escalator. I was in my wheelchair SMH
  • Holy shirt

Movie Date

  • I went to see Inu-oh and fell asleep
    • My face was hurting so i couldn’t go to lunch after and talk about it and we had to go back home
    • I worried about masks but We were the only ones at the 11am show
    • I showered shaved and wore a collared shirt

Old Millenials

  • The oldest millennials are entering their 40s
  • my cousin is in town and i wanted to call her but my face hurt when i talked so i gave up
  • i got fed up and called her anyways
  • in a few days we’re having her over for dinner
  • it hurt to talk to her but only once or twice and it was worth it
  • its a real bummer when disability intrudes on your ability to talk to your cousin

This Week’s Selfie:

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My webcam broke so I used my phone
Fourth of July cover
Going places in my chair- Hit my head again- Barbecue using the tray method- The Pepper Show is back.

Welcome to the What’s The Matter With Me? Podcast, “Fourth of July”

In this episode, we take stock of the busy Fourth of July holiday week that was full of wheelchair rolls, head injuries and new grilling setups. Plus, we got a new Pepper Show!

  • Statistical shout outs to places far and wide and thick and thin where people listen to the show.
  • Have you heard of the disorder where people take s**** in their sleep? Yeah it’s called sleep crapnea.
  • While I was copying that down my wife was like, “You can’t say that, it has swearing in it.” I was like “Yes I can, I’ll bleep it.” And then she was like, “You have to leave the ‘sh’ sound otherwise people won’t know what word it is.” I was like “I can do that!” And then she said, “Would you please turn off the light?” I said, “Would you please let me write down this f****** joke!”
  • July 1- Fell and hit my head on the house, like in the old episode It’s Fall. I ordered replacement tips for my stick from REI
  • July 2- I went to a wedding in my chair, and then I went to the reception in my brace.
  • July 3- I shopped at Urban Ore in my chair. I went to get lunch at the fried chicken sandwich place and the guy who was next in line had me cut in front of him and I accepted. But then I started to feel weird about the people after him.
  • July 4- On the 4th I went to San Jose to my parents’ block party where I rode my wheelchair. My mom told me she was happy I was there and that I was in my chair taking it easy. It wasn’t much of a barbecue- I didn’t have anything that was grilled. We had chile verde
  • July 5- I barbecued a redo of the 4th of July by grilling hot dogs, bratwurst, and corn. A new method using aluminum trays, yielded positive results and the kids gave it positive reviews. For dessert, we had apple pie.
  • I recorded the Pepper Show and the vibe is more or less soft in the head. But at least I did it. I can do a better one next time.

This Week’s Selfie:

fourth of july selfie
I got out the cowboy hat because why not? YOLO
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Infusion, short roll, little league, Temporary Services, Sunday sauce
  • We went to marina park and rode the chair around. cut too short- kids played on a zipline & swings
  • I had a runny nose and tons of sneezing yesterday and looked up, “is a runny nose a symptom of coronavirus?” and it said yes it was
  • The steroids they gave me at my infusion helped the pinched nerve in my neck
  • Randy, the disabled practitioner. (It’s not my first time working with a disabled practitioner- see “New AFO Brace”)
  • Temporary Services’ Book Waste Book
  • Spanish Wordle hole in one
  • Ate Sunday sauce and it was too rich.. it wrecked me
  • Heard a Mississippi records special on the radio. “portland art museum”
  • give thanks and praise that I may be able to produce Hoppin Hot Sauce
  • Donate to your local nonprofit community radio station- get a t shirt
  • Wee Man had friends
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Getting outdoors, not rinsing the dishes, antibody test results, and staying simple in the kitchen
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I went to Costco on the Saturday before Thanksgiving. On accident, of course I didn’t think about it.

I went to the Cantor Arts Center at Stanford University.

I had to position myself to avoid the glare. The Rodin, they had “The Thinker”. So, I went into the gallery and saw that and I had to kind of position myself all around it. And because you have to spend so much, because I had to spend so much time positioning myself, I couldn’t do this kind of casual looking. It really changed the way I looked at stuff. I had to look kind of more actively. It was interesting. Anyway, it was just a really cool experience having been to so many art shows in my life. It was totally new way of doing it, but I enjoyed it. I did it. I’m going to do it again, I think that’s cool and so cool stuff with the wheelchair, positive things.

I appeared on another MS Podcast, the YEG MS Podcast. Read on..

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I have a wheelchair and I busted it out over the weekend. It was kind of a big deal. I’ve never ridden around in a wheelchair before. We’ve talked about it before on the podcast that I’ve got the wheelchair, but also that I’m kind of apprehensive about riding around in a wheelchair. But I did it. I was with my family. I had gone to see my cousin Amy in the hospital where she’s recovering. We talked about that last episode. And then my wife who had been in nanny in San Francisco was like, “There’s a playground right around here in Golden Gate Park and kids love it. Let’s go there.” And I thought, “maybe I’ll ride my wheelchair around.”

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Get The Whole Story: Please check the Microvascular Decompression tag page to hear all the updates about my MVD surgery.

My life feels totally different now

I have a lot more energy and I am much more present. I’m able to think complicated thoughts.

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