I miss having barbecues and I’ve got to get over it. Cat meowing in the middle of the night. Children are like lice.
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I miss having barbecues and I’ve got to get over it. Cat meowing in the middle of the night. Children are like lice.
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Bad news first: the kids are bad, they run away.
Hoppin Hot Sauce won some awards.
This week’s episode takes place in a cable car.
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My name is John I’m 39 years old husband father of two small business owner radio DJ podcaster and I have multiple sclerosis so I made this podcast to share what I’m going through.
What’s The Matter With Me? is an MS podcast and it’s also about other things I’m not a medical professional and you should not take this for medical advice if you need medical advice ask your healthcare provider
Download the What’s The Matter With Me? Podcast on Apple Podcasts and whatsthematterwithme.org
Shoutouts to Rocky and Pat and some other people who contacted me to say they were digging this season premiere and looking forward to more. You can contact me using the contact page.
A very validating new life activity that I have is answering Hoppin Hot Sauce fan mail. I am so glad to get Hoppin Hot Sauce out in the world.
I went to John John’s school orientation. It was in the cafeteria. I had to figure out where to sit. One of the teachers couldn’t work a microphone. They passed out a handout that listed the topics they would discuss but no useful information about them. The principal talked about rules for a long time like the uniform and punctuality. I’m very excited, I’m just traumatized having gone to school already I didn’t consider going back.
I increased my dosage of Gabapentin because I was having jaw pain. It made the pain go away but it made me sleep all day. I have reduced my dosage and I feel some pain but very low on the scale like one or two out of 10. I’m not too sleepy or sedated. I’m taking 300 extra milligrams right now. A couple of days ago I was taking 900 extra milligrams. Something like that. I think I should get some guidance from the nurse.
One of the coolest things about this podcast is that when they listen to old episodes like from a year ago I can gauge how I feel now versus how I felt then and it is useful. I am doing a lot better than I was a year ago.
I’m doing a special on KFJC about the musicologist Ian Brennan called Recording The Voiceless. He travels around the world recording prisoners, albinos, victims of genocide poverty and war. He’s recorded in Vietnam and Cambodia. Rwandan refugees. Albinos who are stigmatized and even killed for the a white color of their skin which is considered to have special properties. The albinos have a tune called “Disability is not a crime”. That’s how I got into it. The way he records voiceless people is kind of similar to the way disabled people aren’t given a voice, and I am concerned with that. I’ll play my interview with Ian on Thursday May 24th from noon to 2 p.m. Pacific Time on kfjc 89.7 FM and kfjc.Org where there will be an archive of it for 2 weeks.
Hoppin Hot Sauce is real and is produced and it’s for sale at hoppinhotsauce.com. I’ll discuss it in more detail in an upcoming episode. If you end up as a customer, maybe you will end up writing me some fan mail.
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Thank you for tuning in to the What’s The Matter With Me? Podcast. In Episode 23 Roll With The Punches I fall asleep at the KFJC meeting, hang in the yard, experience intense Trigeminal neuralgia pain, and read an old song lyric I wrote called “Roll With The Punches.”
I fell asleep at the KFJC weekly station meeting and that was distressing. I woke up and everyone was looking at me. It shook me and later in the evening I fell off the station couch awkwardly. I go to KFJC to relax and these kinds of things make that difficult.
I went in the yard with John John. It was a sunny warm day and we took our shirts off, wrapping them around our heads. We laughed a bit and smiled. It was a good thing.
I have been experiencing pain from trigeminal neuralgia in my right lower jaw on the buccal side. It feels like going to the dentist, and when they say “it’s going to pinch” before you get novocaine and then it pinches and won’t stop pinching all night long. It’s very hard, and I hope it stops soon.
I read a song I wrote called Roll With The Punches. Check it out:
Roll With The Punches
You gotta roll
With the punches sometimes
Sometimes,
You gotta rollYou gotta know
Who’s on your side
Just as much as
Who’s passing you byDon’t have no glass jaw
O Hell Naw
When you get knocked down
You gotta stand up tallYou gotta bend but don’t break
Give em all they can take
And a whole lot more
Until you hear em hit the floorYou gotta roll
With the punches sometimes
Sometimes,
Sometimes.
-John Hoppin, 2013
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