Welcome to the Whats The Matter With Me? Podcast Season 2, Episode 10: Monterey
We went to Monterey on vacation. It was frustrating because I felt very limited by disability. I have such a hard time on vacation because I can’t do what I used to. I need to figure out a new way.
- My name is John, I’m 39 years old, husband and father of two, small business owner, radio DJ, podcaster, and I have multiple sclerosis so I made this podcast to share what I’m going through.
- Whats The Matter With Me? is an MS podcast and it’s also about other things. I’m not a medical professional and you should not take this for medical advice. If you need medical advice, ask your healthcare provider.
- Download the Whats The Matter With Me? Podcast on Apple podcasts and whatsthematterwithme.org
Episode 9 Recap
Japanese proverb tattoos, swimming while disabled. Posted it on reddit and some folks reminded me how scary swimming can be.
Watering the garden
I watered more this summer, a couple times a week. I haven’t been falling which is good. Because the last time I fell I fell through the fence and it looked kind of rickety for a time. It’s fixed now.
Peter Brotzmann, the Machine Gun
I interviewed Peter Brotzmann on kfjc. He is a wild free jazz saxophone player who is famous for his rough sounds. He recorded seminal free jazz album Machine Gun. I got him to admit that he plays sweet and tender now that he is older. And talk about butoh
No more radio gig for a while
Resigned from questionable Traditions. It was a weekly program on KFJC where I played music from around the world, and questioned it’s validity or value, or something like that. I must admit to feeling some purposeless. However …
I have a purpose, and it is
Selling hot sauce. I’m starting to write regular emails, reach out to customers and grow my business. I did a hot sauce tasting at a local grocery store where they sell my sauce. It was great to get out there, press the flesh and push the product again, like I did at the Fancy Food Show last season in episode 30. it is exciting but also scary.
I tell myself I know what I’m doing, that I have worked at e-commerce companies before. I’m just generally copying what these bigger companies did and applying it in my little business. I try to get out there and to talk with customers, find new ways to sell products every day. I can do it!
We went to Monterey on vacation. It was frustrating because I felt very limited by disability.
We went to the aquarium which is very beautiful and wondrous. I have a lot of childhood memories there, but in the here and now it was hard to move around in the dark with the jellyfish and crowded area very difficult to walk. I hope my kids had a good time, I did not. It wasn’t something I could just go and do — it was very challenging to navigate the experience, the crowds, and my disability at the same time.
Cram it in
When I used to go on vacation I would try and cram everything into my itinerary. Now I need a nap. I need to eat food regularly. I can only travel so far.
On the cliff
I love to see things and experience new things, like anyone. It was frustrating for me to be stuck up on the cliff looking down at my childre playing on the beach and not be able to join them because I couldn’t traverse the rocky staircase. It upset me.
Bathroom death scene
The bathroom where I was staying was big and beautiful, open with a jacuzzi and all covered in stone and it seemed like a total death trap every time I wanted to shower or brush my teeth.
I have such a hard time on vacation because I can’t do what I used to. I need to figure out a new way.
I’ve been going through lots of trigeminal neuralgia. I’m switching from one medication to another. It has benefits, like feeling more awake and present, but the changes in medication exacerbate my symptoms. More about TN in S2, E6: Awaker.