What's The Matter With Me? Podcast

I have multiple sclerosis, trigeminal neuralgia and I made this podcast to share what I’m going through.

Confronting The Invisible

I’m feeling unmoored
  • Shout outs to Patrick who sent me a ted talk about chronic illness and using spoons as a metaphor to regulate energy- “Confronting the invisible” by Olivia Larner
  • Her talk centers around the idea that most people don’t see invisible disabilities
  • What matters is not how other people react to me, but how I present myself . I control what I can control. As ability changes, what you can control probably also changes
  • The frustration of becoming older and having your opinion be drowned out by a bunch of younger people’s opinions. Being disabled is similar in that your opinion is drowned out by more able bodied people’s
  • I heard Noam Chomsky’s podcast “Anarchism“- Noam Chomsky has a gravelly voice
  • Rockstacker & Condor: East San Jose characters. rockstacker.com is a thing
  • Olivia Lerner called chronic illness people “spoonies”
  • I like the old-school rapper Spoonie Gee
  • Spoonie Gee “Spoonin’ Rap“. I got that on twelve inch at Jerry’s Tecords in Pittsburg. RIP Jerry. went there in fall 2000, that was a dope record store. the worlds largest all vinyl record store. Jerry Weber died two weeks agar at 73
  • Used to play “Spoonin’ Rap” with Rick James “Cold Blooded” crunked out- those were the days!
  • Thinking about buying a case of Bordeaux and eating steaks every night because of this stupid ad
  • My stats showed and there are people listening to sequential episodes and on the one hand I’m like, don’t listen too close
  • I made easy food


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