Tag Archive for: rf rhizotomy

No More Painkillers

No More Painkillers cover
NO MORE PAINKILLERS: After successful surgery, I’m off of painkillers for the first time in seven years.

Welcome to What’s The Matter With Me? Podcast, “No More Painkillers”

It’s a big day for me because I’m finally free of trigeminal neuralgia pain after successful rhizotomy surgery last month. It’s been seven years that I’ve been battling the disease and it feels like a major victory.

  • Shoutouts to Jersey Girl who told me about the Superfest Disability Film Festival happening in Berkeley & San Francisco later this month.
  • Claude Hopper wrote in to say he had a Chubb Rock record
  • Year Of The Tiger by Alice Wong
  • I sent Original Flavor to Amazon for restocking
  • Help support the kids’ school fundraiser by using this link to look through the catalog. for chocolates
  • ICYMI: I recommend the Gary Cannone Interview Special
  • I’m off pills and in withdrawal again – but its GOOD- I can go to my right better and stand on my own 2 feet’ easier
  • I am tolerating alcohol a little better so i can split a bottle of wine with dinner
    • Knock on wood- famous Last words- throwing triple hexes over my left shoulder
  • I am not adult enough to appear in a zoom meeting
  • Musk is back at it
  • A picture is worth a lot of these
  • “Last night for dinner” Journal: Cauliflower pasta
  • We’re going to the ranch

This Week’s Selfie

No More Painkillers selfie
It’s wild

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Body Horror

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I made it through surgery- artist Gary Cannone preview- Helen Garner on fate- awkward dinner party conversation.

Welcome to What’s The Matter With Me? Podcast, “Body Horror”

Cool episode! I made it through a surgery with all the hallmarks of body horror: zombie anesthesia, facial electricity and a burning nerve. David Cronenberg will be perfect to direct the movie version. Plus, artist Gary Cannone interview preview- Helen Garner on impositions- an awkward dinner party conversation.

  • We are running out of Hoppin Hot Sauce on the zon, because I misread a figure on the inventory report.
Gary Cannone
  • Gary Cannone interview preview
  • I want to learn to write hilarious poetry in Japanese but apparently that’s not a sensible idea

Some very dear friends of mine had a three-­year-­old son who was profoundly autistic. They didn’t know what was wrong with him, and there was no name for it back then. He couldn’t really speak, and he didn’t know any words, but songs would reach him where other things wouldn’t, and he had a pure little voice when he sang. It interested me to see how his parents lived around this huge duty that had been imposed upon them—­to see how an act of fate like that would scour you of all your triviality. You’d have to find something in yourself that was much deeper than what most ­people would need to find.

Helen Garner
  • Helen Garner on autism, about trivialities in the Paris Review
  • Chronic illness erases people- thank you for listening to the What’s The Matter With Me? Podcast, an anti-erasure strategy
  • I had RF rhizotomy surgery and I finished it
  • It remindeed me of David Cronenberg/”body horror”
  • I went through it and now it’s over
Grape Ice Cubes
  • Now I can chew gum without pain
  • I chew grape ice cubes gum
Farro
  • I went to Berkeley Bowl, and did a lot of maneuvering to get farro in bulk. I knew it would be pretty wild.
  • I went to a dinner party and I felt uncomfortable for reasons I do not fully understand
  • Friends, food, conversation. I think I am not used to it.

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The Return Of Trigeminal Neuralgia

the return of trigeminal neuralgia cover
Small electrical slashes and flashes come back

Welcome to What’s The Matter With Me? Podcast, Season 6 Episode 27, “The Return Of Trigeminal Neuralgia”

Small electrical slashes and flashes come back, but a lot quieter since I had micro vascular decompression

In this episode, the return of trigeminal neuralgia: TN discomfort came back. PLUS, Masonic Auditorium accessibility review, autonomous vehicles for disabled riders, and accessible furniture.

  • Great minds think alike, stupid ones too
  • I said last time that all my friends came over, but that was an exaggeration
  • people are leeching the thing, especially episodes about MVD
  • TN slashes: 2 on Tuesday 7/19, 5 on 7/20..
  • John John wants a year long vacation to Hokkaido
  • 6 Things Wheelchair Users Should Know About Autonomous Vehicles
  • Disabled representation on TV: “Best Foot Forward”
  • Burning Spear at the Masonic Auditorium: I ran into dr. Doug and he sat with @namihoppin & I. Then after the show Lurker & Lucky J – cool seats- way up but front and center.. used my chair. The Masonic auditorium was set up well for accessible patrons
  • Pottery Barn accessible furniture collection “Accessible Home”
  • Having small TN sensations when I drink or eat or brush my teeth. Had 1 at the Barrel House when I had a sip of beer 7.24
  • Had a couple on the deck. Swallowing a certain way 7.24
  • Had a handful for the day and 12 while brushing teeth. 7.25 twinges not pain exactly but more like mild electric shock
  • Planning to drop-off my espresso machine to be serviced in Berkeley aug 5

This Week’s Selfie:

the return of.. trigeminal neuralgia selfie
Feeling OK now

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