What's The Matter With Me? Podcast

I have multiple sclerosis, trigeminal neuralgia and I made this podcast to share what I’m going through.

i got covid
i had a birthday dinner and didn’t wear a mask
  • Shout outs to the ceramicist brian R. Jones who likes the longer episodes- he makes the stuff at brianrjones.com
  • he hangs out in a ceramics studio. i attended Alfred University for a single semester and I got him and Steve there
  • try to calm down and go slower
  • I revisited the last night for dinner journal, it had been 13 months. Last night For dinner we had left over meatloaf and martini’s made with cheap gin but at least there was plenty of it
  • 5 oz gin to 1.5oz dry vermouth, garnished with banana peppers. it wasn’t very good
  • me & my wife: Ronin commonsense media sounds like the answer is, sounds fine/ no
  • bunch of ex-govt spies fighting over a briefcase
  • went over it last time: Elon musk is named after a smell, On the other hand John Hoppin is the name of a less wealthy and less popular smell that doesnt own twitter
  • I’m riding the exercise bike 2-3x per week
  • I got asked by another parent in San Leandro if it had happened to me recently and for a moment i wasnt sure if they meant the wheelchair or MS
  • i told them that i had the wheelchair almost a full year before i would ride it around in public
  • it was recommended to me by an occupational therapist at the stanford neuroscience a couple years before that
  • she told me it would help me get there- not spend my energy to get there
  • i’m tired of falling and hitting my head and having to get staples in my head
  • Reading foreign cuisine cookbooks- Ethiopian smoked milk or water
  • Going to dinner at a Moroccan restaurant on Saturday
  • My wife wanted to support the idea of journeying to Ethiopia
  • Roger Maris visited JFK in the white house in his capacity as MS Society’s national campaign co chairman in 1962
  • Last night for dinner and the night before i had pb&j for dinner
  • went to my 2nd kfjc meeting since corona, raided the spliff bin
  • Wet leg, kyle ranson
  • Took the kids to baseball, made dinner, all by myself but i had help. The burger place closed
  • i was afraid i would lose my license
  • Dmv worked
  • Hayward dmv was cool
  • the guy had a hat that said oldies car club and the bull was scrunched up like anthrax – he told me i should work there
  • so i’m afraid tommy lee jones is going to pull me out of line so he can show me some of his techniques
  • ignoring disabled people all the way up to euthanizing them are on a spectrum together (like the way microagression and out right aggression) are both kinds of discrimination
  • Need advice about a wheelchair lift for the car, i know there a re listeners who use wheelchairs, i need to get a machine that takes my chair out of the car bc i dont like someone doing it who is either a woman or older than me.
  • its for the optics
  • Have you heard the sound of the atmosphere dragging across the Earth
  • I went to birthday dinner in San Francisco
  • I had a 3 hour mri
  • Then i had rods drilled into my jaw


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