What's The Matter With Me? Podcast

I have multiple sclerosis, trigeminal neuralgia and I made this podcast to share what I’m going through.


Video podcasting

In “Security Shirt,” I’m experimenting with creating a video version of this podcast. With video, it’s proof. I’m going to focus on trying to make movies, then seeing if I can integrate them into the podcast

Shout outs

  • Shout outs to Wylie
  • Shout outs to the Sandman who wrote Jack Tar & I about a live Buddy Guy concert on TV yesterday


  • Thinking back to “Hit My Head On The Bed,” maybe I should get a bed frame with posts or other hardware on the bottom so I can hang on to that – because there isn’t anything to grab on to at the lower end of the bed.

Sao Ichikawa wins Akutagawa Prize

Sao Ichikawa, the winner of the Akutagawa Prize, speaks at a news conference in Tokyo on July 19. (Takuya Isayama)

Security Shirt Movie

  • Security Shirt story – “a man is blocking the stairwell”

AFO drama

  • My AFO brace has come unglued again
  • I’m falling a lot, getting bruises, and taking lots of ibuprofen

Thor Raining Down Lightning

  • Trigeminal neuralgia was like lightning coming through the clouds. The clouds came from the carbamazepam and gabapentin I was on at the time. But then the lightning of trigeminal neuralgia in electrical nerve disease was like being in an area where there are lightning storms. The lightning is pretty unpredictable and there are mostly clouds, but once in a while the lightning strikes or there can be a lightning storm that breaks out and there are many, many electrical strikes. It causes a lot of anxiety because of how unpredictable it is. And having gone through many many of those lightning storms, I am kind of traumatized. I am on the same medication today and under more or less the same clouds. But there is no lightning when there is any feeling at all it is very muted. But like I said I’m traumatized. I’m anxious and I’m fearful. I have to recognize that

Easier dressing

  • Relaxed fit clothes fit my AFO easier but they are going top be a change for my wardrobe

From the Corrections Desk

  • Correction from my wife. We didn’t use carvana that we use CarMax. The same one we use the last time

Smoke Signals

  • Burping after eating Taco Bell vegetables tastes like cigarettes
  • I was about to tell this lady at National Mobility and Seating right when the guy told me I was at the wrong place and he was behind the window at first so I didn’t see him
  • My wife was relieved

On The Beat

  • I saw Kerry in the park at 8:30 a.m. trying to do what he can for as long as he can

Frank Fat’s

Revenge Against All Odds

  • Crippled Masters. One with no legs, the other no arms.
  • Disabled self-representation in a martial arts film.
  • An avant garde film.
  • Ended with no falling action

This Week’s Selfie

With my wheelchair


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